"Diabetes is for me...": The health care workers perspective

Aim: To analyze the representations and meanings of diabetes from the health workers perspective through an ethnographic approach. Method: Participants who attended a national conference on diabetes care were asked to write a narrative responding to the question: "For me, diabetes is. . .". Narratives were qualitatively analyzed by two researchers following the principles of content analysis. Nvivo software was used to organize and code the data. Results: Of the 147 conference participants, 140 narratives were analyzed: 86 written by nurses, 54 by physicians. Six themes emerged: The disease which summarizes the biomedical and biopsychosocial definitions of diabetes; The patient's illness experience, which describes the impact of diabetes on the patients lives; The clinician's experience, where clinicians fear the impact (actual or potential) of diabetes on their families or themselves; The clinician-patient relationship, where the importance of a good patient-clinician relationship and the related emotions are described; and The social and healthcare system, which describes the healthcare system as an aid as well as an obstacle in patients' care. Conclusion: Despite some academic description of diabetes, our results showed that health care workers, especially nurses, have a profound comprehension of the patient illness experience that sometimes leads to the identification with patients. The relationship and patient education were described as a complex and challenging area of practice for both professions. Training on relational and emotional skills could improve the patients care.