Parents of children with developmental disabilities face many challenges that can lead to emotional and affective problems, difficulties in caregiving, and partial mental representations about themselves and their children. A multi-component approach that includes the analysis of priority support goals and the planning of tailored therapeutic actions is needed to successfully target these families’ needs. As different types of validated interventions are available, the choice of the most appropriate strategy to pursue a family-centered approach to support parents of infants with developmental disabilities is not obvious. In this chapter, we introduce a meta-theoretical model, the porridge-like framework of parenting. It considers three interrelated domains in parents’ experience-affective (A), behavioral (B), and cognitive (C) aspects-that are intertwined with the specific degree of the child’s impairment (D). This ABCD model may provide professionals with pragmatically valid guidance to plan and deliver family-centered healthcare interventions. By covering the multi-dimensional nature of parenting challenges, it provides clinicians with conceptual categories to recognize the specific needs and to choose the most suitable therapeutic action to address them. In addition, it aims to promote an ethical approach to family-centered rehabilitation for children with developmental disabilities, maximizing the potentials of a collaborative assessment approach.
A Meta-Theoretical and Multidimensional Guidance to Understand and Support Parenting in the Context of Child Disability: The Porridge-Like Framework
Provenzi L.
2023-01-01
Abstract
Parents of children with developmental disabilities face many challenges that can lead to emotional and affective problems, difficulties in caregiving, and partial mental representations about themselves and their children. A multi-component approach that includes the analysis of priority support goals and the planning of tailored therapeutic actions is needed to successfully target these families’ needs. As different types of validated interventions are available, the choice of the most appropriate strategy to pursue a family-centered approach to support parents of infants with developmental disabilities is not obvious. In this chapter, we introduce a meta-theoretical model, the porridge-like framework of parenting. It considers three interrelated domains in parents’ experience-affective (A), behavioral (B), and cognitive (C) aspects-that are intertwined with the specific degree of the child’s impairment (D). This ABCD model may provide professionals with pragmatically valid guidance to plan and deliver family-centered healthcare interventions. By covering the multi-dimensional nature of parenting challenges, it provides clinicians with conceptual categories to recognize the specific needs and to choose the most suitable therapeutic action to address them. In addition, it aims to promote an ethical approach to family-centered rehabilitation for children with developmental disabilities, maximizing the potentials of a collaborative assessment approach.I documenti in IRIS sono protetti da copyright e tutti i diritti sono riservati, salvo diversa indicazione.
