‘Knowing and Treating Kosaki/Penttinen syndrome’ international collaborative consortium: recommendations for follow-­ up, natural history and a real-­ life observational study about safety and efficacy profile of tyrosine kinase inhibitors

Yordi-­ Michaël Bouhatous ‍‍;Cecilie Bredrup;Agnes Maurer;Liubinka Mirakovska;Alison Foster;Kenjiro Kosaki;Céline Jost;Jean-­ Baptiste Demoulin;Maxime Luu;Pierre Vabres;Jean-­ Emmanuel Kurtz;Elise Schaefer;Anne Guimier;Valerie Cormier-­Daire;Derek Lim;Sarah Thompson;Lorin Olson;Hae Ryong Kwon;Cristina Aguirre-­Rodriguez;Unai Hernandez-­Dorronsoro;Itziar Martinez-­Soroa;Helena Iznardo;José-Manuel Jr Mascaró;Eulalia Baselga;Silvia Kalantari;Alessandro Mussa;Andrea Gazzin;Diana Carli;Ingrid Svinvik;Hatice Mutlu-­Albayrak;Sarah Bluefeather;Yuri Zarate;Toshiki Takenouchi;Thirona Naicker;Antoinette Chateau;Ashmika Gokhul;Anele Dube-­Pule;Muzhirah Haniffa;Winnie Ong Peitee;Ann Nordgren;Maud Carpentier;Christine Binquet;Anne-­Sophie Briffaut;Laurence Bal;Dinel Pond;Cecilie F Rustad;Marc Bardou;Laurence Faivre

2025-01-01